Paperback Edition: USD
Kindle Edition: USD
Publication Date: May 09 2013
Page Count: 444
Paperback: 6″ x 9″
Living with Periodic Paralysis: The Mystery Unraveled
A must read for anyone suffering from the devastating effects of the mysterious disease called Periodic Paralysis. After nearly dying and after many years of misdiagnosis and mistreatment by medical professionals, Susan and Calvin uncover the cause of her illness. Based on a lifetime of experience and after nearly 3 years of experimentation, detailed research and tremendous study, they share their discoveries. living with Periodic Paralysis unravels the inherent mysteries of this rare condition.
They say, “invention is born out of necessity”. Living with Periodic Paralysis was “invented” or written out of necessity or an urgent need. The fact is there are no other up-to-date books written about Periodic Paralysis (PP), which is a serious, disabling and life-threatening, rare, genetic disorder which is often over-looked, misdiagnosed and mistreated. Information found on the Internet is scattered and sketchy at best. There is an urgent need to educate those with the different forms of Periodic Paralysis and their family members on all aspects of the disease including how to manage and alleviate their symptoms. There is also an urgent need to educate the medical professionals dealing with those individuals, and their families, to learn to recognize, diagnose and properly treat their patients in a timely manner. Lastly, there is a need to educate and bring awareness to everyone about this cruel and life destroying disease because the symptoms resemble so many other conditions and mistreatment with the wrong medications can be disabling or deadly. living with Periodic Paralysis is written through the eyes of Susan, a woman with this disease. She nearly died due to many years of misdiagnosis and mistreatment by medical professionals. Susan and Calvin, her caregiver and husband, uncovered the cause of her illness and managed to get a diagnosis at the age of 62.
Periodic Paralysis intermittently causes muscle weakness and paralysis as well as heart and breathing issues. There are no known cures and treatment options are very limited. However, Calvin and Susan have developed natural, common-sense methods to manage her symptoms and help her to maintain some degree of normal daily activity. Calvin and Susan share their discoveries and unravel the mysteries of this rare condition in a well written and easy to understand format. It is their intention that the reader with Periodic Paralysis will improve the quality of his or her life by following the plans and advice and that they will know they are not alone in dealing with this disease. They desire the medical professionals reading the book will be able to recognize, diagnose and treat individuals with Periodic Paralysis correctly, in a timely manner and with the respect they deserve. To all others, they want to share their story and bring awareness of this cruel disease to the world with hopes of finding better treatment and a possible cure. living with Periodic Paralysis was written and published by Susan and Calvin Hunter, retired teachers who recently moved to the Olympic Peninsula.
“After a lifetime of illness, misdiagnoses and medical mistreatment (some of which caused irreparable damage), two years ago at the age of sixty two, I finally discovered the name of the progressive disease that left me totally and permanently disabled with weak muscles throughout my body, intermittent periods of total paralysis, along with heart problems, breathing problems, blood pressure problems and exercise intolerance. Years of testing had ruled out all of the commonly known neuromuscular diseases. I had to look for the “zebra”, as one of the over thirty doctors I had seen over the past six years had called it. I had to do it myself.” (Page 2)
Paperback Edition: USD
Publication Date: 11-21-2014
Page Count: 218
Binding Type: US Trade Paper
Trim Size: 8.5″ x 11″
The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally
Provides readers with information and methods to better manage the often over-whelming and disabling symptoms of all forms of Periodic Paralysis. It is the second book written specifically about Periodic Paralysis, a very rare, usually inherited and often debilitating mineral metabolic disorder. It contains comprehensive information about the various forms of the condition written in an easy to understand format. It is a user-friendly guide, a set of plans, instructions and ideas for aiding individuals with all forms of Periodic Paralysis, to better manage their symptoms in natural and common sense methods. It is a workbook with a set of tools such as charts, forms and even a medical journal, with clear instructions for completing and using them. Each is designed to be individualized and may be utilized for the various plans or sections of the book. The charts and forms may be scanned and used separately or the pages may simply be completed in the book itself for keeping all medical information in one place. Easily transportable, this book is also a handbook and can accompany each visit to doctor appointments, the ER or the hospital. This guide may stand-alone or may be used in conjunction with the first book about Periodic Paralysis, living with Periodic Paralysis: The Mystery Unraveled. This guide, workbook and handbook is designed to assist individuals with all forms of Periodic Paralysis to ‘be the best they can be naturally’ and unravels the inherent mysteries of this rare condition.
”Calvin had hope. He had a desire that things would turn out for the best. He was correct in what he did and how he did it and was optimistic that I would get better. He maintained hope that I would improve in all ways and the truth is that I did.” (Page 141)
Paperback Edition: USD
Publication Date: Sep 18 2015
ISBN/EAN13: 151719623X / 9781517196233
Page Count: 114
Binding Type: Paperback
Trim Size: 6″ x 9″
Color: Black and White
A Bill Of Rights For Periodic Paralysis Patients
There was and is a great need for a bill of rights for all individuals who have a form of the disabling mineral metabolic disorder known as Periodic Paralysis. The Periodic Paralysis Network (PPN), inspired by the members of the ‘Periodic Paralysis Network Support, Education and Advocacy Group’ has now created ‘A Bill of Rights For Periodic Paralysis Patients.’ This booklet, the first in the PPN A.S.E.A. Series (Awareness, Support, Education and Advocacy), begins with an explanation of what a ‘bill of rights’ is and why they are written or created. ‘A Bill Of Rights For Periodic Paralysis Patients’ is outlined in seven sections, covering general rights, diagnosis, treatment in labs, treatment by doctors and treatment in the emergency room and the areas of research, awareness and insurance. In those, each concept is described and explained based on the true and actual history, experiences and needs of individuals with Periodic Paralysis. Hopefully, this information will bring about awareness of these issues and educate everyone who has the occasion to read this booklet as well as the medical professionals with whom individuals with Periodic Paralysis must depend upon for correct and proper care.
“We hope also, that this knowledge will empower all individuals with Periodic Paralysis to support and defend themselves in dealing with all medical professionals, in all situations, by knowing and understanding their medical rights. This includes their general rights, diagnosis, treatment in labs, treatment by doctors and treatment in the emergency room and the areas of research, awareness and insurance.” (Page 109)
Paperback Edition: USD
Publication Date: Aug 24 2016
Page Count: 144
Binding Type: Paperback
Trim Size: 6″ x 9″
Color: Black and White
What Is Periodic Paralysis? A Disease Like No Other
Defines, describes and explains all aspects of this little understood medical condition in Volume Two of the Periodic Paralysis Network A.S.E.A. Series (Awareness – Support – Education -Advocacy). Unlike the three prior books co-written by this author, which were designed to aid individuals with Periodic Paralysis and to improve their lives, this booklet has been designed and written to also share with their family members, friends, teachers, coworkers, neighbors, doctors and others who should know about and may want to know, the truth about this cruel disease. This fourth book, just as the other three, was written because there is a need to educate others and bring awareness of Periodic Paralysis to the world. There was and is a great need for a booklet that can explain the important aspects of Periodic Paralysis in simple terms and how they relate personally to and for each individual with this disabling condition. Some of the issues that are covered include but are not limited to, what Periodic Paralysis is and what it is not, how it is diagnosed, how it is treated, what the symptoms are, what causes the symptoms, what does an episode of paralysis look like, what is the prognosis and what kind of complications can occur. For each of these issues there is space for personal information to be included and written in as needed to further explain how the disease affects each individual before the book is passed to a family member, neighbor, doctor or teacher. Each concept is described and explained based on the true and actual history, experiences and needs of individuals with Periodic Paralysis. Periodic Paralysis is a multifaceted, complex, perplexing, complicated and overwhelming condition, which is very misunderstood by most doctors around the world, let alone patients with it and their friends and family members. The varying words, phrases and medical terms associated with it are difficult to pronounce and spell and even more difficult to understand. This book is an attempt to write about this very difficult and little understood disease in terms that are easy to understand and in an organized manner for better comprehension for those who need to or desire to know about it. Hopefully, this information will bring about awareness of these issues and educate everyone who has the occasion to read this book.
”Periodic Paralysis (PP) is a very rare medical condition that is not like any other disorder. It is very unique; very different. It is not a neurological disease, nor an autoimmune disease, nor a disease of the mitochondria, nor an endocrine myopathy, nor is it a form of Muscular Dystrophy. It is in a category all of its own and needs to be treated in non-conventional ways. This means it must be treated differently than any other disease or illness.” (Page 17)
The Young Trombonist From Williamsport
This historical biography about William Joseph Knittle Sr. unfolds during the Great Depression, a very difficult time in the history of the United States, which lasted from 1929 through 1939. It moves into and through the World War II years. The story begins in Williamsport, Pennsylvania when he was only sixteen years old. With just his trombone, the few things he could carry, a couple of coins in his pocket and the dreams and determination of playing his music with the big bands, he left on foot hoping to make it to the big city. One foot in front of the other, he made his way alone during the worst year of the Depression when millions of other people were on the road penniless and homeless looking for ways to care for their themselves and their family members.Why did he leave home? What happened to him on this journey? Where did he go? How long did it take him? What did he see? What did he do? Who did he meet? Did he make it to the big city? Did he play his trombone with the big bands? Did he fulfill his dreams? Did he ever return home? All of these questions and much more are answered as his story unfolds.
“With just his trombone, the few things he could carry, a couple of coins in his pocket and the dreams and determination of playing his music with the big bands, he left on foot hoping to make it to the big city. One foot in front of the other, he made his way alone during the worst year of the Depression when millions of other people were on the road penniless and homeless looking for ways to care for their themselves and their family members. Why did he leave home? What happened to him on this journey? Where did he go? How long did it take him? What did he see? What did he do? Who did he meet? Did he make it to the big city? Did he play his trombone with the big bands? Did he fulfill his dreams? Did he ever return home?” (Page xiii)
Sotos Syndrome: A Tribute To Sandy
The author relates a poignant account of her precious daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder. This book is well written, accurately detailed, and full of emotion and contains a photo album, as well as detailed information about Sotos Syndrome.
Set in the 60’s and 70’s, as a young mother, the author struggles to obtain the appropriate necessities and rights for her daughter. Through these endeavors, she realizes the need for reform in all aspects of life related to disabled individuals and their families. She sets out to make those changes. The messages in this book are still relevant and important in today’s world. This is a “must read” book from which everyone can reflect, ponder, appreciate, learn and gain inspiration.
“She is right! What an injustice and I am part of it! I know exactly how she feels. I understand. I am the only person in this room who has true empathy for this mother.” (Page 6)
Ebook Edition: USD
Publication Date: 08-01-2020
Trim Size: 6″x9″
Page Count: 218
Blue Sky Mountain: At Home In The Woods
Authored by John D. Hunter & Susan Q. Knittle-Hunter
Blue Sky Mountain is the narrative and photo journal of John and Susan Hunter as they built their home and lived their lives on the North Slope of the Uintah Mountains. John shares personal reflections of their hardships and joys as their dreams unfold.
”Our evening ritual was to sit on a rock and watch the sun set below the horizon. It was quiet and gave us time for reflection. In the higher elevations the temperature drops as the sun completes its daily journey across the sky. Wearing a light jacket during the evening summer months was usually enough for comfort. Knowing that the warmth of a campfire was nearby was reassuring. We usually ate dinner and took care of the cleaning before nightfall. Retiring to the camper for a game of cards, word puzzle, or radio news, were our favorite evening activities. The camper was small but cozy and warm. It was nice to escape the agitation of the insects and heat of the daytime sun. The foam mattress absorbed the muscle aches and pains and gave us the comfort we needed to sleep and dream.”